Thanksgiving

There are two anniversaries to my brother’s death. One is Thanksgiving Day, and the other is November 23, when Thanksgiving fell that year. This year marks the 15th year since he left us. This event and the time of year that it happened are imprinted in the cells of my body. I usually start feeling more depressed than usual in November because of this fact, along with the cold and darkness, as well as the onset of the holiday season that magnifies loneliness.
This November, my depression seems to be tempered. Maybe it is due to my prolonged largely catatonic state, or maybe the inflammation is beginning to ease in my brain and thereby putting depression at bay. Maybe I am starting to learn some lessons from my illness about releasing myself from my past and stepping more fully into my present.
I have been on the Autoimmune Paleo diet for almost six weeks now, but unfortunately, it has not touched my Chronic Fatigue Syndrome. My energy remains non-existent and somehow even worse than October, which has been frustrating to say the least. My digestive tract is also still troubled. Days where I must get up early are particularly hard on it, as has happened for the last two years. In addition, I have been losing sight in my right eye. I feel like my retina is detaching!
Lately, I have been hearing stories about people who are following the AIP diet who are not only not improving, but are being diagnosed with additional autoimmune disorders! I have heard that once you have an autoimmune disorder, it is common for another one to develop every 3-5 years (multiple sclerosis, rheumatoid arthritis, Hashimoto’s, etc) . These stories and statistics are extremely alarming! I have also been hearing about people who have strictly followed this diet for more than a year and then discovered (through the Cyrex Array 10 testing) that they are sensitive to many of the foods on the AIP approved list! By following this diet, foods (such as lettuce and carrots, for example) are causing inflammation, which allows disease to persist! Many people have to backtrack and continue to remove foods from their diet with the end goal of eating the AIP approved foods that work with their particular bodies for the rest of their lives. I have also heard of people who became allergic to foods that they later reintroduced, such as almonds! Once your body starts producing antibodies to food particles that have leaked into the bloodstream (now foreign invaders to the body), they will always illicit an immune response to these foods. Gut problems and autoimmune diseases are no joke. They will affect you in one way or another for the rest of your life. Nothing will ever be the same.
In some ways, this is a good thing. Illness wakes you up to areas of your life that need attention. The key is to make this fact work in your favor. I am learning that I have been a ticking time bomb all along. The childhood trauma and stress that I experienced on a daily basis, the non-ability to feel safe or loved or worthy, and the poor nutrition I received did not allow my genes to be expressed the way they were meant to be expressed. My adrenal glands have been worn out from remaining on high alert for too many consecutive years. My gut flora was probably always out of balance (its population actually changes to match the people you are living with: entrainment in the microbiome!), but I didn’t know it. The events that happened on the PCT were too much for my body to handle. They have produced catastrophic effects.
Diet and supplements are not working. If I want to know what foods are still causing inflammation in my body, I will have to find a new doctor who will order the tests for me and pay thousands of dollars for them, myself. At this point, it seems like this would be the best route to take. I have started the process of having my medical records transferred to a Doctor of Osteopath, whom I have never met. I am hoping she will be more receptive to my physiology and problems than the primary care doctor I saw this summer.
I am learning a lot these days. I am learning about the molecules that act as keys to open up the tight junctions in the intestines, I am learning that probiotics won’t do anything unless you have a specific bacterial strain in your gut that acts as a seed for the others, and that probiotics need their own food to work. I am learning that brain inflammation (stemming from gut inflammation) inhibits the signalling pathway to the adrenal glands. Even more importantly than the science (which is all still in very early stages), however, I am learning that what is happening OUTSIDE of your body is equally, if not more important that what is happening inside of it. Family and psychic ancestral pain affects your DNA and the resilience of your body to rid itself of parasites and heal. I have been under the effect of psychic ancestral dysfunction and pain my entire life. I need to free myself from these chains in order to be able to live. Now is my opportunity to make some big changes in my life. This forced period of sitting is giving me the opportunity to change my belief system and thereby change my gene expression. Underneath it all, this illness is asking me 1) if I really want to be alive and 2) what will I do with my life if I get my health back (and even if I don’t!). It is also giving me the opportunity to learn the most important thing of all- to start loving myself.
I still have moments when I question the reason I should be alive if I must remain in this state for years, but these days, these kinds of thoughts pass much more quickly than they did in the summer. The last time I felt very depressed was in October when I tried to take a yoga class at my studio in Boston. Not only is the drive a nightmare in rush hour traffic, but the parking is equally tough. A new restaurant just opened on the street that I usually park on, making even less space available. On this particular night, I parked in the only spot I could and hurried in to class. When I walked back to my car after my enjoyable hour and a half, I discovered that it was gone! Its location was unknown to me, and I didn’t have a way to get to it. It was also pitch black out. It cost me $100 to get my car back, and then I found a parking ticket on the windshield when I finally got home for another $55! This was not a pleasant experience- especially for a girl with no income! For the next three days, I felt extremely depressed and didn’t do much other than sleep. I guess it was another way for the universe to tell me to stay home and rest. Don’t try to do the things you used to do, Wendy!
Something else that I am learning is that gratefulness reduces inflammation in the body. As one of my teachers, Jacqui Bonwell said, “Thanksgiving is a state of mind.”
Tomorrow, I will not do anything I haven’t been already doing for these last few months. I will stay home and rest and eat the foods I have been eating for the past 5.5 weeks. I may treat myself to my first coffee in that amount of time with coconut milk creamer that I will make myself. And I will enjoy it with the first Autoimmune Paleo baked dessert that I made- pumpkin bars! Maybe I will one again start a formal written gratitude practice. I am hoping that I will remain free of my usual deep depression from being alone on this holiday. If I can do that, I will feel like I am improving in at least some way. If I don’t manage that, I will simply allow what is and what comes.

I wish you all a happy and peaceful Thanksgiving! Special thoughts for all who are struggling on this day. Remember that you are loved.

And for anyone needing a little relief or humor, here you go! (I love dramatic musical life interpretations!)

“Living Through Death: Love at the End of Marriage”

This is an extraordinarily beautiful and thoughtful piece by Lara Dotson-Renta, found on the ‘On Being’ website. I highly recommend listening to the recorded version in the link, where you can hear the nostalgic music that accompanies it. I listened to it in the dark just before I fell asleep one night a couple of weeks ago and found it extremely enjoyable, comforting and wise.

Living Through Death: Love at the End of Marriage

“The sound drifts over to our bedroom like clockwork. Every night the piano plays a jaunty tune next door. It is usually the piano’s keys dancing in turn, but sometimes it is a record from the ’50s, a swaying, big-band sort of music that somehow brings our little corner of the neighborhood back several decades to when these homes were built, and a marriage was just beginning. Time rewinds and restarts with each change in key.

I stop and sit each time, pulled to the window. I pause to listen and imagine the scene as the music sweeps into each corner of their home — over the graying couch in the sitting room, over the mounted family photos, over the beautiful open Bible on a wooden stand. Our elderly neighbor plays faithfully, the notes an affirmation of presence, a victory of joy, a connection maintained.

Our neighbors have been married for over 50 years. The husband attended our alma mater, Dartmouth College, where my husband and I met. When we moved into our home, the one we are raising our babies in as we sweep into our mid thirties, our neighbor, my husband, and I traded stories of young lives in rural New Hampshire experienced five decades apart. It is impossible to not see some mirror of one another, an inversion of life stages just next door. Time has a funny way of crossing your path with those you need to meet, with those that have something to teach you.

Our neighbors raised five children together, and have grieved the loss of an adult child. Rather than sink into their grief, they remained aloft, holding on to one another like defiant petals in the wind. The creases in their eyes remember, but don’t tell. Their hands are soft and worn with time; their soft bodies such a contrast from the small and fast bodies of the children I hug and care for each day, the babies that give my days rhythm and purpose. I feed, I bathe, I sing, and I comfort. So does my neighbor. He and I spend our days caring and loving, and preparing different goodbyes: My children are growing, changing, preparing for adulthood, when they will leave me and begin to craft lives of their own. Every day they are close to my chest they are also a day closer to leaving, to letting go. I will mourn this, but it is the way of life. My neighbor’s wife is changing, and preparing to leave him as well. With much grace and kindness, he is loving her through what remains, tending to her body as it gives in and gives way, preparing a gentle path for her death. This too is the circle of being, but a way of knowing and understanding that I have not experienced yet, that I can only hope to live up to if put to the test.

I watched her body deteriorate from the window or my doorstep, in short visits and morning hellos. I saw the energy present just a few short years ago fade a little — in the crook of a missed step, in a word forgotten, and then nearly lost entirely, eyes adrift. She is present in vibrant sparks and spurts, usually when my children come by — there is something about a small child that awakens something in a mother. Nevertheless, I have watched her fade from the world bit by bit, remaining in it but not quite of it.

Except for when she is with him.

When she is with her husband, she is here. After more decades together than not, and as her mind and body slowly erode, it is clear that her husband is the axis upon which things can still make sense for her, the security she needs to navigate this final gray space between life and death. I see the sparkle in his eye when he looks at her still, and it is both heartbreaking and inspiring. There is no measuring, no holding back, no keeping score or negotiating there. There is no use for pretense at this place in the journey, and he is all here, all in, with her.

It is rare to see the promises of love lived out fully, to watch people supported by family and friends in late life in such a way that such may be realized. It takes a village to raise a child, and it takes a village to guide someone to their end: I see their daughters come by, their grandson mowing their lawn every week, a local nun’s order helping with adult care. I grapple very much with the idea of God in this broken world, with the idea of a divine something that I cannot quite grasp or logically explain — but if such a thing exists, the devotion I see in my neighbors would embody and affirm it. His simultaneous acceptance of letting the love of his life go, and his commitment to being there and loving her through it, of bearing witness and being a part of a process that must be immensely difficult in its labor and finality, is the stuff of legend. Getting married is easy. Loving anyone this way, for this long, is hard and messy, miraculous and graceful. Accepting and facing death, stopping treatments when it is evident they are of no further use, choosing to live what is left simply rather than prolong, is quietly courageous and brave in a culture ill at ease with death and dying, uncomfortable with what it all looks like. There is no glamor in the smells and textures of death, in gradual decline. But it is here where life is at its most palpable, its most raw, its most layered.

As often as I can, I stop in and visit, and bring over a treat or a reminder that we are here should they need anything, anything at all. I have been told that I am a kind neighbor, and that this is very nice of me. I reject this. The truth is I am the lucky one to have been privileged enough to witness both the simplicity and intricate nuance that is enduring love, to see firsthand what end-of-life care is and means, to consider that each day of marriage is a step on a very long walk, a walk that must end as all do.

Their melody plays in my head each night, making me pause amid the frenzy of laundry and toddler bedtime and remember that it all comes full circle. We are all in some way preparing for endings. Some day the music will stop next door, and everything will change. But for now, the music keeps playing. Life is being lived, completely and honestly. I will keep listening. I will keep remembering that the most extraordinary lives are often the ones lived most quietly, most remarkably, by one’s neighbors and loved ones, if we just pay attention. If you just listen, everyone has a song.”

“The Fourth Sign of the Zodiac” (part 4) by Mary Oliver

Late yesterday afternoon, in the heat,
all the fragile blue flowers in bloom
in the shrubs in the yard next door had
tumbled from the shrubs and lay
wrinkled and fading in the grass.
But this morning the shrubs were full of
the blue flowers again.
There wasn’t a single one on the grass.
How, I wondered, did they roll back up to
the branches, that fiercely wanting,
as we all do, just a little more of
life?

What am I Eating?

I grew up on a diet of Kellog’s cereal, skim milk, white bread, deli ham, peanut butter and jelly, Twinkies and Hostess Cupcakes, Fruit Drinks, Campbell’s soup, Kraft Macaroni and Cheese, Hot Dogs and canned beans, Oreos, Pinwheel (marshmallow) cookie, Hershey candy bars, Ice Cream, Doritos, and soda (in other words- junk!). On a special occasion, my mother would make “greenbean casserole” of which the directions were found on a Campbell’s soup can. We also had a box of Dunkin’ Donuts on some Sundays. If we ever ate “out”, It would be at MacDonald’s or Papa Ginos. I ate this way for 18 years. By the time I graduated from college, the fanciest restaurant I had ever eaten at was a Chinese food restaurant. I grew up on the campus of a private high school and when in session, my family would often eat our dinners in the cafeteria. This is where most of my “nutrition” came from. This diet, along with the criticism and lack of love I was receiving on a daily basis, formed my constitution. Suffice to say, I had a lot to overcome.

I was speaking with a woman who attended my talk recently about our gut issues and she mentioned that 80 year olds are not suffering from these problems (and don’t understand why we are) because they grew up eating real farm food, which provided them with strong constitutions. Until she said that, I hadn’t thought about the role the diet I consumed in my formative years was playing a part in my current state. My heart sank a little more.

After college, living on a very low income, high in college tuition debt, and not yet having learned to cook, I continued to eat cereal, soup, bread, dumplings, candy and cookies as my staples. I lived in a room in an apartment in which I did not feel comfortable. It wasn’t until I moved into my own apartment that I tried cooking fish and other meals for the first time. Ten years ago, feeling heavier than I wanted to, I bought a no carb diet and workout book and began making the recipes from it (as well as following the strength exercises). This was a deprivation diet, and after the initial 2 weeks, I had a hard time sticking with it. However, three meals from the book became my staples over the next years. I would cook batches of turkey chili, Basque chicken, and ratatouille on the weekends, and bring portions into work to have at lunch. One of the recipes was for tumeric chicken strips. Unfortunately, there was a mistake in the recipe, calling for WAY too much of the spice. When I tried it at work the next day, I felt like I was being poisoned! I could not take more than 2 small bites. Since that time, I have not been able to eat tumeric spice again (which is unfortunate as this is a highly anti-inflammatory food!)… The memory of that incident remained too strong in my body. My breakfasts since that time have also been based on a recipe in that cookbook: egg whites (which turn out to be the bad part of the egg for those with autoimmune diseases!) with shitake mushrooms and tomatoes, and turkey bacon. I went back to drinking coffee and eating cookies and chocolate daily to satiate my sweet cravings. I’ve always felt that I needed to have something sweet after every meal.

Since returning home from the PCT, I have not felt like cooking at all (aside from the same breakfasts I just mentioned). Transitioning back to this other life is very, very difficult (today I was thinking about how that time felt and I am very happy that I am no longer in that space!), and cooking for one person is never fun anyway. Because of my continued stomach pain, I was eating Greek yogurt with berries for lunch. And I would buy soup, or already cooked food from the Whole Foods hot bar for dinner. I thought miso soup was a healthy thing to eat throughout the winter.

In the last few weeks, I have discovered that most of the things I thought were “good” for me (eggs, tomatoes, yogurt, miso soup, turkey chili) were actually slowly killing me!

For the last three weeks, my diet has consisted of:

Breakfast:
-A smoothie with spinach, ginger, turmeric, berries, a bit of green powder, a bit of brown rice protein powder, and goat kefir.
This week, I will start to add in some celery, cucumber, and papaya.
-Green tea

Afternoon “snacks”
-Plantain Chips (LOTS of them! This is my new snack since I can’t have any nut butter, bars, or chocolate). I eat two 9 ounce tubs per week.

-8 ounces of Bone Broth per day

-Usually a sauasge

-(On days where I feel REALLY awful, I allow myself to eat some cacao covered coconut pieces)

Dinner:

-Salmon, chicken, or turkey, kimchi, an array of vegetables consisting of any of the following: collard greens, broccoli, avocado, sweet potato, roasted butternut squash, and occasionally a brussel sprout (blech!)
(A Thanksgiving dinner every night!)

-1/2 bottle Ginger Kombucha

I am following the Auto Immune Paleo diet (an anti-inflammatory diet), with a few exceptions.
Kefir is not approved on this diet, as it is dairy. However, I believe that goat’s milk kefir is okay for me at this point, as it does not contain the harmful components that cow’s milk does.

The brown rice in my protein powder is not approved as it is a grain. However, I personally feel that I need some protein in my smoothies to make them more substantive, and of all the possibilities, brown rice is the safest protein powder base for a person with digestive issues.

My green powder contains goji berries, which are not approved, but I am really not worried about this!

For the first four days of my diet, I ate some sliced bell peppers (gasp!) with my mid-day sausage.

I’ve also eaten sausage with unapproved spices such as paprika and chili, simply because I could not find an alternative.

Cacao is not approved as it is a bean. Sometimes, a girl needs a treat!

The Auto Immune Paleo diet (like any diet) is not a one fits all plan. It has only been around for 2 years and clinicians are now seeing patients who have strictly followed this plan (and are down to 10-15 foods) for a full year or more who are still not healing. There are many possible reasons for this result. One is that every individual has food sensitivities that are specific to them. Some of these foods are on the approved list for the AIP diet. Some people are allergic to the gelatin in bone broth, for example. Despite being told that bone broth should help them, it is actually hurting them! Food allergies and sensitivities cause inflammation in the body and inflammation causes disease. At this time, there is only one fully comprehensive food sensitivity test available. It is performed by Cyrex Labs and is called Array 10. Unfortunately, insurance does not cover any of the cost. A health care provider must order the test and the patient pays the $680 cost. Most of us suffering from chronic diseases are not only not able to work (or work minimally) and can not afford even our basic cost of living, but unfortunately, aren’t able to pay for this kind of information that we need to heal ourselves. Other factors that may cause a person to not get better are hidden co-infections (also a new frontier). For example, a person may be under the attack of several active chronic viral infections that they are not aware they have and which aren’t helped by diet. The science behind these diseases is very, very complicated (immunoglobulins, antigens, antibodies, etc)! Sometimes, a person who is being treated for gut issues will not heal because the brain component of the brain-gut axis is impaired and not included in treatment. The vagus nerve might not be properly communicating to the abdomen. Other people have histamine sensitivities. Because the number of tests to be done are overwhelming, and due to my lack of finances, I am going to do everything I can on my own first. It is also extremely hard to find clinicians who are at all aware of these issues. I can’t reiterate enough how insulting and hopeless it feels to be told by doctors that a person who is physically suffering so much is simply depressed and needs talk therapy. (It is actually NOT helpful to verbally repeat the trauma that has happened to you in the past… This only serves to prolong the cycle of suffering… But that is a topic for another day!)

I have now completed 21 days of this diet, and I am very proud of how well I am doing with it! I do not miss coffee (or chocolate for the most part!) and I do not feel deprived (the key to a lifelong diet)! When I do start to crave foods that I am not allowed to have, I tell myself to settle down, settle down. Usually they dissipate. One major caveat to this type of diet is that you must always stay close to home (at this point, I don’t even have the option for anything else!). I dropped 5 of my extra 10 pounds that I have put on over the course of this last year (yesterday marked the day that my knee fully gave out one year ago) in the first 17 days and am now holding steady. The other five will have to wait until the inflammation in my body subsides (this takes a LONG time) and until I have the ability to work out again. I’ve already noticed an improvement in the inflammation in my brain (if left unchecked, the disease will change the myelin sheath surrounding the brain and progress to early dementia…). I am starting to think more clearly, remember things, and I have finally read my first book in a very long time! (I think this is only the second one I have read this year!). It was “Chronic Fatigue Syndrome: The Hidden Epidemic”, which was excellent, just as my friend had said. I highly recommend it for everyone to read. (It is not being published anymore, but you can still buy it used). It not only helps one understand what it is like to have this condition and how to go about healing it, but it offers great advice for everyone on how to prevent such a disease from happening in the first place. As time goes on, I fully believe that more and more people will struggle with autoimmune diseases due to the poisoning of our food system, and the amount of stress we carry in our lives.
Although this book was published in 1992, the authors fully knew then, as many clinicians are discovering today, that diet and supplements are only ONE part of the healing process. All disease is really an opportunity to examine one’ beliefs about life and make changes that will last a lifetime. It also allows one to examine the stress issues that led to the disease. Changing patterns in the subconscious mind is really the root of healing. Often, people who suffer from autoimmune diseases find it hard to love and forgive themselves. I feel that I have a strong intellectual grasp on what I need to do to heal (and have had so for a long time), but as of yet, I have not been able to actually make the deep changes that I need to. Over the course of these next few months and years, I must undertake the hard work of changing my subconscious beliefs about myself and about the world. Before one can heal their illness, they must first heal their life. This is the journey that I am about to embark on.

The Mysterious Disappearance and Death of AT Hiker Geraldine Largay

Geraldine Largay disappeared from the Appalachian Trail in Maine on July 22, 2013. She had planned on meeting her husband at a road crossing the next day. Two years later, her remains were still not found. I had planned on posting this article on a significant piece of information pertaining to her disappearance last July, but did not manage to do so before I was hit with my tremendous fatigue. Here is the article: http://thebollard.com/2015/06/30/m-i-a-on-the-a-t/
Although it is long, it is well worth the read. It goes into depth about the Navy SERE (Survival, Evasion, Resistance and Escape) training school which is located on a large section of property adjacent to the Appalachian Trail for approximately a mile to the north and south of the shelter Gerry was last seen at. (Interestingly, there is also one on the west coast, very close to the PCT in Warner Springs, CA). This school employs psychological and physical torture tactics on its students to prepare them for war scenarios. Participants role play escape, capture, and torture scenarios in the wilderness. Brown writes, “David J. Morris said he underwent SERE training as a lieutenant in 1995. ‘I was hooded, beaten, starved, stripped naked, and hosed down in the December air until I became hypothermic,’ he wrote. ‘When I forgot my prison number, I was strapped to a gurney and made to watch as a fellow prisoner was water-boarded a foot away from me. I will never forget the sound of that young sailor choking, seemingly near death, paying for my mistake’.” Many participants are deprived of sleep, tortured, and confused by the reality of the situation. I do not believe that I was aware of this school or its property during my thru-hike, and after reading this article, I am thankful that I did not know about it then.
The article also mentions that a call was placed to the owner of the Stratton Motel, where Gerry and her husband planned to stay on Wednesday night. The unidentified caller said that Gerry would be late. This call is hugely suspicious to me, No other hiker on the AT had seen Gerry after she left the shelter that Monday morning. The previous night and that morning, she was in very high spirits. She had only 8 miles to hike on Monday, and 13.5 on Tuesday. Only someone that played a part in her disappearance would have known that she would not arrive on time (or at all). It is even more suspicious that the Maine Warden Service stated that they knew who the unidentified caller was and then backtracked when pressed. Hutch Brown wrote, “When I asked Lt. Kevin Adam of the Maine Warden Service about this, he said, ‘We’re sure we know who made the phone call, but the verbiage was screwed up.’ After I expressed surprise that they’d identified the caller, Lt. Adam backtracked a bit. ‘I believe we know who made the call,’ he said. ‘A little got lost in translation.’ The caller was reported to have been a female by the Stratton Motel owner.
After reading this article, I felt that the answers concerning Gerry’s disappearance and death could be found within the borders of the SERE school. It seems highly likely to me that a sensory deprived participant in this mock escape and capture scenario came upon Largay as she hiked this section of the AT that practically touches the SERE property and confused her as an “enemy”. However, this scenario was not even questioned nor were searches conducted on much of the SERE property! Clearly, the SERE school holds great power over all of the search and rescue groups and state departments and was not willing to cooperate with search efforts. I do not understand why more pressure was/could not have been exerted upon them.
Brown writes, “When I first called Lt. Adam, a lead investigator and spokesperson for the Warden Service, I asked him about the SERE School. ‘I don’t know anything about that,’ he said. He wasn’t sure whether there had been a SERE course in progress the week Largay vanished or not. (At the end of that week, helicopter pilots spotted campfires inside the facility and initially thought they were a sign of Largay; they later determined SERE students had set them.)”
“The staff and students of the SERE School aren’t just inclined to be secretive about what goes on there; they’re legally bound to keep it classified. But according to Prosser, neither he nor his staff have even been questioned by state authorities about Largay’s case. ‘I was never interviewed,’ he told my editor, ‘and I don’t recall any interviews with members of my staff.’

On October 14, a “contractor” discovered the skeletal remains of Largay. It was no surprise to me that they were located on the SERE property about 2-3 miles from the Appalachian Trail. The case was dismissed and many people commented on the fact that her family now at least has closure. To me, and to the author of this article, this finding would bring anything but closure! http://chrisbusby.bangordailynews.com/2015/10/22/politics/case-of-missing-a-t-hiker-far-from-closed/
Her family declined to comment until they could process the information.

Many hikers have commented that the section of the trail she was on was very well marked. In order to get to where she was found on her own, she would have had to bushwack through tough terrain for 2-3 miles! This was a very happy woman who was fulfilling a dream of hers, scheduled to meet her loving husband the next day. She also had a whistle on her backpack strap. If something had happened to her in which she felt in danger, she would have blown the whistle if she could have.

At the end of October, her case was officially declared closed. An article in the Portland Press Herald reported, “The skeletal remains of Largay were found Oct. 14 in a wooded area about 3,000 yards off the trail, two or three miles from where she was last seen in July 2013, authorities said.

‘These findings now bring closure to one of Maine’s most unique and challenging search and rescue incidents,’ Cpl. John MacDonald of the Maine Warden Service said in a statement.
Appalachian Trail thru-hiker Geraldine Largay died of exposure and lack of food and water, according to an autopsy by the Office of Chief Medical Examiner.

The Maine Warden Service announced the results of the state medical examiner’s inquiry, which also used DNA to confirm Largay’s identity.

A cellphone found with the remains was examined by the Maine State Police Computer Crime Lab.

‘Information found on the cellphone concluded that Gerry reached Orbeton Stream and the discontinued railroad bed crossing in the late morning of July 22, 2013. Shortly after reaching that intersection, she continued north on the Appalachian Trail and at some point left the trail and became lost,’ MacDonald’s statement said. ‘After examination of the remains and working in conjunction with information from investigators on the case, the Chief Medical Examiner determined this was an accidental death due to lack of food and water and environmental exposure’.”

This report is an injustice to Gerry and to her family. She did not become lost and bushwack 2-3 miles off the trail. The AT is well blazed, and any long distance hiker who has not seen a white blaze in awhile and thinks they are lost knows to turn around and backtrack until they find one again.  She did not remain silent while teams of searchers and dogs and helicopters were scouring the area trying to find her. She did not lie down and wait weeks to die from starvation without searching for water or for help.  She had a cell phone that she texted her husband from that morning. Even if she was out of range, she would have kept walking until she found reception. She did not die from “exposure”. She was well equipped to survive cold temperatures for long periods of time (and this was July!).  If she was incapacitated by a medical event, she would not have been able to get to the place she was found. Gerry’s family deserves real answers. They, at the very least, deserve to know what actually caused her disappearance and death. There are many questions that still need to be answered and I hope that pressure will be exerted on the officials at the SERE school to cooperate and provide much more information. This could have happened (and might still happen) to any one of us hiking the Appalachian Trail!

Chronic Fatigue Syndrome

I have been in the depths of Chronic Fatigue Syndrome for the past four months (and can now see that it started to make its appearance in April when my thryroid started malfunctioning). In July and August, I was sleeping up to 19 hours per day. I could feel that my adrenals were completely depleted and I thought my life was over. I didn’t want to live in that condition. I couldn’t even respond to e-mails. I would see that someone had written me, and felt the normal feeling of needing to respond, yet my body and brain were paralyzed. It felt as though I was reaching out my hand, but couldn’t make contact. Or that I was opening my mouth, but couldn’t speak. I was so tired that I could not say the word “hello” to someone passing by me. I could barely make it to the grocery store. Living with this disease is like having a shade attached to the top of your head which is always drawn down to your ankles. My head constantly hurt and the few hours that I was awake, I lived in a haze, unable to do anything but watch TV. By September, I realized that I was suffering from Chronic Fatigue Syndrome, in which no amount of sleep replenishes you, and any energy expended further depletes you. I was very fortunate to have a fellow long distance hiker write to me about her experience with the disease. She wrote me one of the best e-mails I have ever received. She told me about the epiphanies she received during this time, gave me the name of the best book written on the subject, suggested I be open to my own miracles happening, and urged me to not attempt to do any exercise (even walking or stretching) for a full six months, among many other things. She also told me that I will never be cured of this illness, although it is possible to put in into remission.
By the middle of the month, I learned that there is a strong link between Leaky Gut (holes in the intestines) and Chronic Fatigue Syndrome! This was precisely what had happened to me! Food leaks through these holes and travels into the bloodstream. These toxins illicit an immune response and create inflammation throughout the body. This inflammation then starts to shut the other organs of the body down. My thyroid and adrenal glands had already been clearly affected. The liver and kidney, and other organs are also at high risk. This systemic inflammation also primes the body for a host of other autoimmune diseases, as well as cancer. Prior to my discovery, both my primary care physician and endocrinologist refused to test me properly for thyroid or adrenal function. I was at my wit’s end, being actively turned away from help. didn’t know what I was supposed to do. But this discovery gave me understanding of what was happening in my body, and steps to start taking to address the root cause. Through serious and very diligent dietary work, I learned that it was possible for some healing to occur within a time frame of 9 months to two years (with the ever present possibility of it returning- especially when not being extremely attentive to what one is eating). I knew that I needed to incorporate kimchi, kefir, and bone broth into my diet on a daily basis, and eliminate all sugar, dairy, and gluten.

I started to eat the kimchi and make smoothies with kefir on a nearly daily basis beginning sometime in September, and by the end of the month, I started incorporating bone broth into my diet. After this last introduction, my intestines became very painful again- a response that surprised me. I decided to take a day off and then only drink 8 ounces per day. The pain began to subside as time went on.

After discovering a wonderful website by a nutritionist named Jessica Flanigan, I realized that I was not going to have a chance at healing unless I eliminated ALL foods that cause an inflammatory response. Because I now have an autoimmune disease on top of Leaky Gut, I needed to eliminate even more foods: Coffee, sugar, all grains, all dairy (including yogurt), eggs, nuts (including almond milk), seeds, all beans (including miso and soy), alcohol, tomatoes, peppers, chili, etc, etc. I read that 95% is not doing the diet. And I got very sad. The initial elimination period lasts from 2-3 months, after which you are allowed to add back in a single item every five days and see how your body reacts. Most people with an autoimmune disorder have to stay on a highly restricted diet for the rest of their lives. Those who suffer from Leaky Gut are in the same situation. The lack of good bacteria and the intestinal holes this produces cause an array of food allergies in the body. I also have been learning that not all those who follow strict diet and supplement plans heal (even after years). There is clearly another piece to these illnesses that represents a more spiritual aspect. This is a topic that I am very fascinated by and will be writing a lot about in the coming months.

I took a weekend to gather my strength and began my very restricted diet on October 19th. Prior to this start, I would often tell myself that I do not even want to live if I can’t have coffee or chocolate. I felt like those were the two things in my life that gave me the most pleasure and I couldn’t see how it was possible to be alive without them. I also thought about my 2 week attempts at no carb diets 10 years ago and how impossible it became to do that sequential times. I didn’t FEEL good. Every body is different and requires different foods. I started to reason with myself that I needed sugar and coffee and that without those things, I wouldn’t have enough energy. But then I thought… My energy can’t get any lower than it is now, and since I can’t move or even stay awake for many hours, I really don’t have anything to worry about. I just had to come to terms with no longer receiving any pleasure from food. It was now purely functional.

And so, Monday morning, I had my first cup of tea, and made my first cold smoothie on a very cold morning (another reason I thought I couldn’t do this…). This is now my only choice for breakfast. I had a raging headache that afternoon and evening, but i got through it (NSAIDS are also off the list). I have now successfully completed day 12. I have learned that when presented with a life or death situation, it is easier to do something very hard and restrictive than when you are merely trying to lose some extra pounds.
I also FINALLY started meditating one week ago. Every night, I have sat for 15-25 minutes! The funniest thing is, after all of that resistance of getting off the couch and moving to the floor, I quickly discovered that I LOVE being in that protective space where nothing can touch me! The ego mind will do everything it can to keep you from doing those things that are best for you! And lastly, I have officially started my study of “A Course in Miracles”!

This path to healing is likely going to be a long one. Most people stay in the acute phase for at least a year. Others spend 8 years, or 20 years, or even a lifetime in it. The famous Buddhist nun, meditator, author, and speaker Pema Chodron has had it for the last 20 years. Currently, I am sleeping an average of 14 hours per day (after 12 hours of sleep, I get up, stay awake for about 4-5 hours, take a 2 hour nap, then stay up for another 4-5 hours- mostly sitting still, watching TV or listening to podcasts). On harder days, I sleep at least 16 hours. My body still has no ability to recover, which is one of the hardest things about this illness (Goodbye hiking!!). When I do more than sit all day, I have to sleep at least 14 (sometimes 16)  hours overnight. My body feels like a cement block and most of the time, I can not even open my eyes. In the last 4 months, I have not been able to sleep less than 12 hours per night. I have only had to give my talk 5 times in the last 3 months, but I couldn’t have done any more than that. My brain started to become impaired and I was losing my memory. And each talk would wipe me out for up to a week afterwards. Another hard aspect of this illness is its invisibility. People who see me on a rare occasion don’t see me as a sick person. They have no idea what my daily experience is like. If I were on crutches or in a cast, some people might extend more sympathy, but no one knows what I am and have been going through. They also can’t comprehend what the experience is like having never gone through it before. I did meet one woman who came to my talk this Tuesday who told me she had suffered from it. She said those were the worst months of her life. She had a constant, very painful headache for 4 months, felt that she was a burden on her family, and wanted to end her life. This is an extremely difficult prolonged experience. No one asks for a chronic illness. It robs you of your life. But I am excited to dive into a deep period of learning and healing and see what arises if I manage to break through to the other side!

I look forward to sharing my experience with you!

Thank you for following.
And thank you for your patience!

Hope For the World

Each of these powerful videos was brought to my attention today. The first is one of the most beautiful, strong, and touching wedding scenes that I have ever seen.
https://www.youtube.com/watch?t=1&v=bUFgYjKz70o

The second is one example of an incredible miracle and a reminder that much of what occurs in the world can not be seen by us.

And the third is a strong reminder from a six year old girl of what we all must keep remembering in order to change the world around us. When we each steadily and consistently act out of our hearts toward the people around us, a ripple effect will be created that will alter mass consciousness. Here, she schools her divorced parents on the importance of becoming friends and acting from a place of groundedness.

“My heart is something. Everyone’s heart is something, too.”

http://www.faithtap.com/4195/little-girl-pleads-with-mom-to-be-friends-with-her-daddy/

When we change and act from love, the world changes for the better, too.

“The Journey” by Mary Oliver

THE JOURNEY
By Mary Oliver

One day you finally knew
what you had to do, and began,
though the voices around you
kept shouting
their bad advice–
though the whole house
began to tremble
and you felt the old tug
at your ankles.
“Mend my life!”
each voice cried.
But you didn’t stop.
You knew what you had to do,
though the wind pried
with its stiff fingers
at the very foundations,
though their melancholy
was terrible.
It was already late
enough, and a wild night,
and the road full of fallen
branches and stones.
But little by little,
as you left their voices behind,
the stars began to burn
through the sheets of clouds,
and there was a new voice
which you slowly
recognized as your own,
that kept you company
as you strode deeper and deeper
into the world
determined to do
the only thing you could do–
determined to save
the only life you could save.

I Figured it Out!

I realized all by my little self this week that the Chronic Fatigue Syndrome that I have been experiencing, as well as all of my other health problems over the past 2+ years all stem from my intestinal problems. Two years and four months ago, while I was deep in the Sierra Mountains and hiking at altitudes of 11,000-14,500 feet with giardia, I accepted two antibiotic pills from a fellow thruhiker. He was a nurse and carrying the pills in case he got infected, himself. I was very surprised that he said it was a single dose, but took his word for it. Those two pills (and the two more he gave me two days later) ended up obliterating my gut. Because most of the “good”, necessary bacteria in my system was killed off, I got infected by an even worse bacterial infection that I had never heard of before (C. Dif). I continued hiking on the belief that my body would be able to overcome this infection on its own. (Additionally, I had no health insurance, have had a very poor history with doctors, did not want anything more to do with any type of antibiotic, and didn’t believe I had time to get off the trail, find a doctor, get this all taken care of, and still make it to Canada). On a biological and rational level, it made no sense that I was able to hike well over twenty miles per day when I could not eat enough calories due to the extreme pain eating caused me, as well as the constant loss of nutrients from my body. But for the next four months, I did.
I thought that resting at home would finally help me heal. It did not. Neither did taking every probiotic imaginable. For more than a year after returning home, I suffered from crippling stomach pain and several other symptoms that I don’t particularly care to write about. By the fall of 2014, I did some research on my own and discovered that I had “Leaky Gut Syndrome” which means that, due to the imbalance of bacteria in my gut, which I was not able to correct, my intestines were full of large tears. Every toxin that entered my body in the form of sugar, dairy, or gluten, (as well as large food particles in general) was now leaking into my bloodstream and affecting the organs of my body. It first attacked my skin. For the past two years, there hasn’t been a day where I felt comfortable being seen in public or in which I would be okay with having my picture taken. From the articles I read, I learned that I both needed to stop ingesting any of these types of foods, and instead eating such things as bone broth, kimchi, and kefir. I tried finding bone broth at Whole Foods, but they did not sell it. The other foods sounded too disgusting to even try. I was not ready for them at that time. I did manage to eliminate gluten (for the most part) in my diet. I also started taking L-Glutamine and Quercetin supplements to help my intestines seal back up. (When I learned that both eggs and nuts were off the list for those suffering with an autoimmune disorder, I wanted to give up. How can I only eat meat and vegetables? I personally can not). At the same time, I was dealing with the pain of my torn meniscus and subsequent surgery. I did notice that my stomach pain became less frequent over the course of the next year (down to a few days per month) and I detected other signs that my intestines were starting to heal, but I knew they had a long way to go.
In April, my next big health problem began, which terrified me. I went to see a doctor with a very open mind. I knew I needed help. Unfortunately, my experiences over the next 5 months only reinforced my opinion of doctors. I was not met with a sense of understanding and was given no help at all. Several times, I was flat out refused when I asked for a simple (and very cheap) blood test.
Starting in May and solidifying in July, I have been experiencing the most profound and prolonged type of fatigue I have ever experienced in my life. I have been essentially bed-ridden and not functional on any level and any time I exert any energy at all, I get a backlash from it in the following days. Normal laws of “exercise is good for you” do not apply to people suffering from this syndrome. Exercise for those who have Chronic Fatigue Syndrome is actually harmful. It depletes your body even further. I somehow managed to give my talk two times in the last two months. Both times, I did not think I could do it. Each of them required over four hours of driving. The following day, I was in a near black-out state in which I could do nothing. The following several days, I remained extremely weak.

This week, I realized that Chronic Fatigue Syndrome is one of the conditions that can stem from Leaky Gut, along with a host of other autoimmune diseases. The body begins to attack itself. Thyroid problems and adrenal depletion are also common. Over time, I have been getting more and more sick. Now, I realize that I MUST seal my intestines in order to have a chance at regaining any of my health. The source of all of my sicknesses over the past two years is my gut. (My second GYN didn’t know what was causing the prolonged heavy bleeding. I now think it was related to my gut, which was affecting my thyroid). The most essential food that I need is bone broth. I finally found a company that I can buy from that will ship it on dry ice. Two weeks ago, I started including kimchi and kefir in my diet. I now have a bit of hope that my health can return to at least a semi-functional state in the coming months- years. If I am strict about my food intake (which seems impossible for a girl who could live off chocolate alone), I might see improvement in 6 months.
I think that it is INSANE that despite telling EVERY doctor I saw my health history over the past two years and four months (I always start with the giardia, then C. Dif and always say that I am still not healed), they don’t even THINK about the possibility of Leaky Gut and all of its ramifications. Instead, they break down every symptom (you have bad skin, you need to see a dermatologist, you need to see a breast surgeon, you need to see a GI specialist for a colonoscopy (because cancer is the ONLY thing we can detect in your intestines), you need to see a GYN, you need to see a cognitive behavioral therapist for depression….). It is 2015 and they STILL somehow do not understand that everything in the body is connected!! Good lord!! Who has the time and energy to go to all those different types of doctors? (Certainly not a person with Chronic Fatigue Syndrome, I can tell you that!) And for what? You can’t try to treat each symptom alone, or perform a blood test for a specific antigen that tells them “I’m fine” (when I am clearly not!) and expect to fix the actual problem! And how is it possible that that they don’t know the connection between the gut and the brain (and mood), or the gut and the skin? I knew that my skin problems were a direct result of my intestinal issues and have told the doctors that. That connection is what lead me to discover my own Leaky Gut diagnosis. And a simple google search lists article after article that confirm the relationship between Leaky Gut and Chronic Fatigue Syndrome.

Had I know about the severity of what I was infected with and the near impossibility of restoring the diversity and numbers of gut bacteria back in June of 2013, I would have gotten this treatment:

Man with almost-perfect poop donates it to help patients with C-diff infection


I don’t know if it was available back then (or in the area of the country I was in), but now I understand that this is what I needed at the time. I have spent far more money in these past two years on numerous probiotics, vitamins, acupuncture appointments, a visit to a homeopath (who actually took the time to listen to me and take into account my lifetime history, but still ended up giving me pills for specific symptoms, which had no effect at all in the end).
Instead, I am on the slow path to recovery in which progress will be measured in years. I do feel a bit of relief that I have found the source of all of my maladies as well as confirmation that what I have been feeling is real. I knew the source of my fatigue was coming from a physical level, and now I know that the source is my hole-filled intestines.

Close to Death

This is how I have been feeling for the past 8 weeks. It feels like I have used up my lifetime supply of energy and am now approaching my death. I have become so depleted of energy that I have become completely unfunctional and essentially bedridden. I remember leaving a yin yoga class on July 9 (this type of yoga is where you sit and hold poses for 3 minutes- it is not active). I felt so tired that I could not speak, which greatly worried me. I could tell that something was very wrong with me physically. In the previous few weeks, I would feel so tired before class began that I didn’t know if I could actually do anything. Before my last class, I told my teacher that “something is really wrong with me.” I started to sleep until 1pm. The following week, I was too tired to drive into Boston. I stopped doing yoga. I didn’t even want to do it because I was too tired. I had a hard time even walking into the building I had to give my talk in during the third week of July. I started sleeping more and more deeply and for more hours. I was even sleeping through construction that was going on next door to me! When I went for a walk, I would press my fingernails into my arm to see if I could feel anything. It felt like there was nothing alive in me. And I felt unbearably alone. I questioned the meaning of being alive if I could not make a living for myself because I had no energy to do so and if I had no people in my life. I couldn’t get the thought that it would be weeks before anyone would even start looking for me if I died out of my head. By the time my surgery came, I thought I might not wake up from the anesthesia.
My surgery was not a pleasant experience. The one goal the nurses had was to get me out of there as quickly as possible for a reason I don’t know. I was the only afternoon patient. Immediately upon getting into the cot, a nurse was unsuccessfully jabbing a needle into my hand while the anesthesiologist was reading the list of dangers and wanting me to sign forms. The nurse went right through my vein. I wanted to ask the anesthesiologist if he could do it. The nurse came around behind me and without warning, stuck another needle into my right arm. It hurt SO badly! I finally complained. The anesthesiologist said there was no needle in there (that it was the tape that was hurting!). The tube was hurting me, likely because she didn’t place it correctly! My surgeon came in and told me that I looked anxious. I wondered what the rush was. I told her that something else was causing the depth of fatigue I was experiencing. She said I should see an endocrinologist, but this would be step one.
I woke up crying and curled up to one side. Deep into several layers of dreams, three people were yelling at me to wake up. Why couldn’t anyone relax for a moment? I was asked to transfer to the chair, my ride was called, and I was told to get dressed. As I ate my toast, a nurse looked at me and asked, “Are you crying again?”. No other patients were there. At home, I kept taking pain medicine and went to sleep. I never received a call from the nurses or from my surgeons office for a follow-up.
Over the next few weeks, I did not regain any energy. A week after my surgery, it took me 3 entire days to gather enough energy to go grocery shopping. That is the only thing I did in those 3 days and I had to go right back to bed after I put the groceries away. I have been sleeping 15-20 hours per day. I don’t have energy to write or even to read. I have tried doing a little bit of yoga at home (up to 2 hours per week), but have found that even that amount completely depletes me for the following few days to the point where I can’t do anything. This is terrifying to me. I’ve always had low energy, but I was able to access some strength in yoga classes and hiking. I used to be able to take two 90 minute vinyasa classes back to back. Now, I can’t imagine even being able to do one 90 minute class. Two years ago, I was hiking over 20 miles a day for 5 months in a very sick state. Now, I can’t imagine being able to climb a single mountain. I have lost a great deal of strength and flexibility in these last two months. This illness is not psychological. It is not depression (although that is a part of it). I have suffered from severe, prolonged depression several times during my life, and although that also depletes you, it comes with a very distinct, awful feeling. This is also not a lack of motivation. It is not laziness. It is not an attitude problem. It is physical illness. I am unable to do the things that make me feel better.
I finally collected enough energy to call and get to my PCP. She was extremely unhelpful. All she seems able to do is make me answer questions about how depressed I am, tells me I must call an ambulance and get to an ER if I am suicidal (not helpful!), and tries to scare me into thinking I have breast cancer! When I asked her what the point of me being alive is if I can’t do anything and can’t earn any income, she just stared at her computer screen. She refused to test me for the thyroid antibodies that I asked for. Next, I saw an endocrinologist. After having seven vials of blood taken and visiting a full array of hospitals in my area, the doctors have nothing to offer me. All they say is that my numbers are normal. Not only are they unhelpful, but they lack compassion, as well. I don’t understand this. I left that office in tears.
It has now been 8 weeks of being constantly depleted and essentially bedridden. I have the symptoms of Chronic Fatigue Syndrome, which means that no amount of sleep replenishes me and any energy that I expend further depletes me in the following days. A fellow hiker wrote to me and told me her own experience of going through this illness and urged me not to attempt to do any exercise (even short walks or stretching) for the next six months. She said I will never be the same. I have already gained a good 8-9 pounds in these last months (at least three following my surgery), and it is not stopping. I fear I will turn into a giant blob if I can no longer move.
I have no idea what the future holds for me. I don’t know how I will be able to support myself, or if I will ever get to hike again. Some people never recover from this illness. Others recover to a certain degree after a long period of time (years), but often relapse or get sick in other ways.
Right now, I am trying to view this as a spiritual exercise.

Please, please be grateful if you have your health, if you have energy, and if you have a support system. Many people do not.

There is another part to this story, which I have been wanting to write about for five weeks, but have been too depleted to do so. (Right now, I am forcing myself to write this, even though I feel awful!). On the other side of the country in Arizona, at the same time of my last surgery, a fellow 2013 PCT thruhiker (27 years old) was preparing for his own death…

I don’t have enough energy to write about this now, but I will add to this entry in the coming days when I can collect a little pocket of energy or two.

Okay… Here is the story. Two days after my last surgery, on Friday, July 31, I saw a post from a fellow thru-hiker who I had not communicated at all with since the PCT. It said, “Please don’t blame anyone. It was no one’s fault.” I read this and didn’t know what to make of it. It didn’t make any sense to me. As I thought about it later that day, I thought it could possibly be referring to the killer of Cecil the lion, as at that time, a lot of people in the yoga world were imploring others not to put all of the blame on one person. I assumed it was either about that or was a cryptic message that I could not understand. The next afternoon, a missing poster of this hiker appeared in my feed. I read through it and noticed that it said he was missing from the Grand Canyon area for one day. I had a hard time understanding how someone could be reported missing from one day ago. He could have been out camping or out of reception range. As the day progressed (I was in a state of complete fatigue and mere days out of surgery), I started thinking about it more and more and realized there must be a good reason why this missing sign had been posted by those who knew him. I started going back through his “timeline” and came across his cryptic post again. By this time, it seemed like I had read that weeks ago! I had lost all concept of time. And this time, I read it completely differently. Oh my God!!! That was his last message to everyone! No!!!! I immediately wrote to his friend that he had hiked the majority of the PCT with (who I had also not communicated with since) and asked him what was going on. “Was he depressed?!” He of all people must have known, I thought. While I waited for an answer, I read through his timeline again and again to see what people were saying. It didn’t seem like much at all, which was very upsetting to me. Why weren’t more people showing concern? [I had been in a similar state myself and had been thinking about asking people if they cared about me or what they liked about me, but I did not. The lack of people responding to him was mirroring how I thought people thought about me]. I wanted to contact his family and ask them to let me know what was happening. I NEEDED to know. I was going crazy. This information hit me extremely hard for several reasons. One was simply because of who he was. This was an EXTREMELY kind and VERY talented YOUNG person who (in my opinion) had every possibility in front of him. I quickly recalled every time that I saw him on the PCT. (At the Anderson’s, much later on a switchback below me, pausing to take in the surroundings with a calm smile on his face, him in the back of the car on the way to Trout Lake, talking to the little girl about her art). NO!! There was NO way that we were all going to lose HIM of all people. I could not face that possibility. It also hit me hard because I suffered from my first intense (-ly long and severe) period of depression my senior year of college and my plan was to buy a one way ticket to the Grand Canyon when the semester was over and jump off. I thought about it a lot that year. It was my way out. The fact that this person that I knew was now in the same situation was overwhelming to me. I posted the missing sign on my timeline thinking that he was already dead by then. And I was incredulous that no one was responding to my post! At this point, I needed comfort! Maybe they didn’t realize the severity of the situation. I wondered why he and I only had 5 “friends” in common in the first place! Why weren’t any PCT people responding and why weren’t my yoga people responding for me? I was mad. And I was going crazy that no one was doing anything. Finally, Connie (the section hiker in Oregon) responded! She said he was so generous to her. I immediately wrote her back and asked her what he did. I needed to hear how he had affected other people. (I still hadn’t heard back from his friend). I told her I was going to meditate for a few minutes so that I could sit and be with him for a bit. When I did, tears just streamed down my face. I was deeply, deeply upset. I thought that if was now gone, I would probably go, too, and be with him and my brother. Before I went to sleep, I asked him to visit me to let me know if he was okay. (Sometimes, I ask my brother or another presence to let me know they are there by touching a part of me and I feel a tingling in my hand or foot). This time, I didn’t feel anything so I couldn’t tell if he was in spirit form or not…
The next day, there was still no news. I did read that someone had said he had turned on his cell phone twice in the last day, but I did not know what to make of that. I told a girl I thought would empathize with me at the coffee shop. She asked if I was close to him and only said, “Well, at least he is in peace”. That made me even more mad. People in our society don’t know how to respond to a person who is suffering from depression and they don’t know how to respond to someone who has lost someone to suicide. (At this point, I needed comfort myself). These are both huge problems!!
After I returned to my apartment, I felt like I needed to DO something. I still hadn’t heard back from anyone that I had messaged. I decided to write him a message directly in the event he was still alive (knowing that his spirit could read it if he was not). I asked him to please reach out to me or anyone else who loved him, told him that we can help each other, and said that I loved him.
Then, for the first time in weeks, I did a little bit of yoga. Immediately after I finished, I saw that his friend had written me back saying that he hadn’t known anything was happening until I told him, that he was scared, and still was. It also said something about him being found!
News was slow to come after that. It was an emotional few days. His mother posted a picture with him several days later that made me cry and cry whenever I thought about it. It is clear that she loves him so much and I can’t imagine what his loss would do to her. That Thursday, he finally posted something himself. I consider it one of the bravest acts I have ever witnessed. He wrote, “As many of you are aware I attempted to end my life last weekend on the South Rim of the Grand Canyon. I was both literally and figuratively on the edge. In the literal sense I was nestled on the Canyons edge waiting for the perfect sunset. There was a darkness that wouldn’t subside and I thought the only way to end it was to be amongst the stars. In a figurative sense I had already fallen, and happened to fall amongst the love and support of all of you. It is difficult for me to express my thanks to everyone involved. I am incredibly grateful and fortunate to have all of you in my life, for it is my life that you have saved. I’m uncertain what the future has in store, but I am hopeful for new adventures, lots of laughs and many perfect sunsets. So thank you all for reminding me that life is worth it, and to wake up everyday with a smile.”
This post also made me cry a lot.
Several days later, he responded to my message and I wrote him this entire story, letting him know how much it had affected me (a person who had briefly crossed paths with him two years ago). His experience allowed me to be on the other side of this situation and helped me understand how much we are all so connected to one another, even though it often does not feel that way. Finally, people started responding to his post. Over three hundred of his friends “liked” it and over one hundred responded. I felt like they were supporting me, as well.
He later openly and honestly shared his story with me, explaining where his depression was coming from, how long he had been suffering from it, his detailed plan to exit the world (it had nothing to do with jumping), and how he was found and his plan thwarted. He told me he has experienced days where he is grateful to be alive, and others where he still wishes he was on the ledge with only hours to go, which I completely understand. I haven’t heard from him in over a month, despite several attempts at trying to contact him. I hope he is doing okay.

I tell everyone that the hardest part of a thru-hike is returning home. If you know a thru-hiker (or anyone who suffers from depression in general), please look after them closely and keep checking in with them. We need to know that we are loved.
Thank you.

#thestruggleisreal